Organisation

The Lily Foundation

1
Reports

Published reports

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2025

Impact Report 2024/25

1,500+ families supported; £1.1m donated by supporters
Key Metric 1
230 counselling sessions funded; 85 patients on IMPACT research panel
Key Metric 2
Europe's largest charitable funder of mitochondrial disease research
Key Metric 3
First ever NHS-approved treatment for mitochondrial disease (idebenone for Leber's hereditary optic neuropathy)