Impact Snapshot
Key Metric 1
2,752 people contacted helpline; 470 people received cost-of-living grants; 43 active research projects; 11 new grants worth £1.3 million awarded; £9.5 million total income...
Key Metric 2
152 people supported through advocacy service; 24 Neuromuscular Centres of Excellence or Pursuing Excellence Awards; 10 NHS treatment appraisal processes participated in; 507 enrolments...
Key Metric 3
80% of neuromuscular care advisor and clinical nurse specialist workforce attended Care Advisor Conference; 324 Changing Places toilets registered; for every £1 spent on...
SMA added to NHS newborn screening 'in-service evaluation' following MDUK co-secretariat work with UK SMA Newborn Screening Alliance; two treatment appraisals resulted in NHS approval; RHS Chelsea Flower Show garden secured to raise awareness with new audiences