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Spotlight YOPD

Report of the Trustees and Financial Statements 2024-25

Spotlight YOPD's 2024-25 trustees' report covers a year of consolidation and growth for the charity focused exclusively on Young Onset Parkinson's Disease. Key developments include a new governance structure separating executive and trustee functions, the launch of a new website and podcast series, active participation in the Parky Charter campaign, and a 17% increase in income — the charity's best fundraising year to date. The charity engaged with policymakers, clinicians and international Parkinson's organisations while building its volunteer and ambassador network. Future plans include representation at the World Parkinson's Congress in Phoenix (May 2026), a new volunteering strategy, and a medium-term financial plan.

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About

YOPD podcasts featuring lived experience contributors and clinical specialists; monthly Zoom community webinars (30+ attendees on average); new website launched on World Parkinson's Day 2024 with YOPD-specific content and wall of fame; social media campaigns including Glitches video series; Parky Charter advocacy at Downing Street (April 2024); talk to 80 clinicians in North Wales; radio interviews including BBC regional; meetings with Disabilities Minister and international Parkinson's CEOs; participation in ParCon and Cure Parkinson's conference; advisory role on YOPD film 'The Game'; partnerships with Parkinson's UK, Neurological Alliance and Movers and Shakers

Key Metrics

Key Metric 1 Income up 17% to £9,204 — best fundraising year to date; total funds grew to £14,271
Key Metric 2 Spotlight YOPD is a UK Charitable Incorporated Organisation (CIO) dedicated to people living with Young Onset Parkinson's Disease (YOPD) — defined as diagnosis before the age of 50. It acts as a voice for the YOPD community, providing peer support, raising awareness and influencing policy. The charity operates with a small but growing team of trustees, executives, volunteers and patrons.
Key Metric 3 Awareness & Advocacy; Peer Support; Policy Influencing; Partnerships; Governance Development

Key Outcomes

  • Income grew 17% year-on-year to £9,204 — the charity's strongest fundraising performance to date; surplus of £4,562 added to reserves
  • Total unrestricted funds reached £14,271; new governance structure implemented separating Executive and Trustee Boards; four new trustees and a Chair-elect appointed
  • New executive roles established including Deputy CEO, Finance Manager and Charity Secretaries; two new patrons added; new policies introduced covering social media, safeguarding and financial controls

Geography

UK-Wide

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