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PSPA

PSPA Impact Report 2025

PSPA is the UK charity supporting people living with Progressive Supranuclear Palsy (PSP) and Corticobasal Degeneration (CBD), their families and carers. Its Impact Report 2025 shows the charity reached more people than ever before: its community grew from 5,660 to 6,131 members, and its Helpline answered 9,984 enquiries.

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About

PSPA is the only UK charity dedicated to supporting people living with Progressive Supranuclear Palsy (PSP) and Corticobasal Degeneration (CBD). Around 10,000 people in the UK live with these conditions. PSPA provides a Helpline, support groups, carers services, information and education, and funds research into better treatments and care.

Key Metrics

Community members Community of people living with PSP & CBD, families and carers grew from 5,660 members in 2024 to 6,131 members in 2025.
Helpline enquiries answered 9,984 enquiries answered by the Helpline by phone and email in 2025, compared to 9,580 in 2024.

Key Outcomes

  • 6,131 members connected to specialist support, information and a community that understands PSP & CBD.
  • More families than ever felt informed, connected and less alone after diagnosis.

Geography

UK-Wide

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