2025 Free

Myeloma UK Impact Report 2025: For today and for tomorrow

Myeloma UK funds research and advocates for people living with myeloma across the UK. Their 2025 impact report covers multiple landmark NHS drug approvals including a world-first BVD approval, a new £1m research grant programme, the launch of a Precursor Framework for myeloma prevention, and a symptom awareness campaign reaching 1.6 million people.

Report snapshot
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About

Research grants and fellowships, MyeTRIAL Partnership, Clinical Service Excellence Programme, Peer Buddy service, Myeloma Helpline (260+ languages), Knowledge is Power awareness campaign, drug appraisal advocacy, Precursor Framework

Key Metrics

Key Metric 1 Multiple NHS drug approvals secured in 2025 including world-first BVD approval, benefitting thousands of myeloma patients
Key Metric 2 UK's leading myeloma charity working to prevent, treat and help people live well with myeloma through research, advocacy and patient support
Key Metric 3 Funding pioneering research, securing NHS treatment access, supporting patients and carers, and raising awareness of myeloma symptoms and precursor conditions

Key Outcomes

  • IsaVRD quadruplet treatment approved in England, Wales and Scotland — 63% of patients still in remission after five years in trials
  • Myeloma Awareness Week campaign reached over 1.6 million people with symptom awareness content
  • 86 hospitals accredited through the Clinical Service Excellence Programme since 2015; helpline now accessible in over 260 languages

Geography

UK-Wide

Impact Snapshot
Key Metric 1
Total income £18,180,000 and total expenditure £18,560,000 (year ended 31 December 2024, charity no. 1084958 England/Wales and SC039654 Scotland); in 2024 spent £3.8m on...
Key Metric 2
700+ members supported through in-person visits and support calls in 2025; 697 support grants allocated in 2025 for essential items including specialist clothing, cooling...
Key Metric 3
Largest global investment in EB research to date: multi-million-pound drug repurposing trial provisionally agreed with LifeArc partner at Guy's and St Thomas' NHS Foundation...
£34,000 raised in 2025 winter appeal supporting families like Darcie's with specialist items, emotional support and research; 697 support grants delivered in 2025; first Members Connect event in Northern Ireland; EB Priorities Setting Partnership study completed providing global research roadmap
Impact Snapshot
Key Metric 1
22,507 households helped through RBL casework and specialist support services across 66 countries
Key Metric 2
22,600 grants given to those in need, totalling £11.8 million
Key Metric 3
733 beneficiaries represented at tribunals, resulting in £24.5 million in War Pensions awards
1,548 new families living with dementia supported by RBL Admiral Nurses service
Impact Snapshot
Key Metric 1
3,600 blind veterans received support across the UK; 447 new blind veterans started receiving support in 2024/25
Key Metric 2
1,598 referrals to rehabilitation services completed; 313 veterans received assistive technology training
Key Metric 3
997 volunteers donated 26,824 hours of support; befriending service awarded Quality in Befriending Excellence — one of only 11 organisations in the UK to...
1,831 National Creative Wellbeing Project packs issued to help veterans reconnect with creativity and independence
Impact Snapshot
Key Metric 1
349,000+ people completed the Know Your Risk tool to assess their risk of type 2 diabetes in 2024
Key Metric 2
£4 million invested in 17 new research projects; total active grants portfolio worth over £45 million
Key Metric 3
32% of people completing NHS England's Path to Remission programme — which Diabetes UK campaigned for — put their type 2 diabetes into remission
Type 1 Diabetes Grand Challenge invested over £23 million in 19 projects across 161 experts from 47 institutions in 8 countries since 2022