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MND Association

Impact Report 2024: How your support in 2024 moved us closer to a world free from MND

The MND Association's 2024 Impact Report describes how supporters' funding and campaigning moved the charity closer to a world free from motor neurone disease. Highlights include the Prescribe Life campaign for access to the drug tofersen, a £500,000 commitment to the MND-SMART trial platform (giving almost 900 people access to promising trial drugs), a further £400,000 injected into research grants, the £5 million Research Nurse Network, and Association-funded UNC13A research that led to the launch of a company in 2024 which has attracted over $100 million of investment, alongside community grants and new support services for people living with MND.

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About

The MND Association is the only national charity in England, Wales and Northern Ireland focused on improving access to care, research and campaigning for people living with or affected by motor neurone disease.

Key Metrics

£500,000 committed to the MND-SMART trial platform
Almost 900 people given access to trial drugs via MND-SMART
£5 million invested in the Research Nurse Network

Key Outcomes

  • Prescribe Life campaign win on access to tofersen
  • Additional £400,000 injected into the research grants portfolio
  • Community grants and new support funded for people with MND

Geography

UK-Wide

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